About

This website is dedicated to the remarkable life, passions, and joys that Samantha Ginsburg Myers brought to the world; it incorporates many of her blog entries and photos that she kept over the years.

An activist on behalf of those with Familial Dysautonomia the rare Jewish genetic condition that she had, Sam passed away at 2:37am Sunday September 25, 2022/ Elul 29, the last day of 5782. One week prior, she had a seizure and cardiac arrest while singing The Climb on her exercise bike. The EMS team brought her back; she was in a medically induced coma and on life support all week in the ICU at NYU where she received excellent care. Saturday September 24, 2022 it became clear that she would not be able to survive on her own. Once we took her off support, she eventually passed peacefully. Fortunately, Sam experienced no pain. We mostly have no choice about how we die, but she left us singing her heart out. We should all exit the world that way.

A few people gathered in person — it was still COVID time — for her funeral at the Riverside Chapel in New York on September 28 2022/ 3 Tishrei 5783, while 400 people from across the planet were able to watch it virtually. Here is a recording of the beautiful service at which friends and family spoke so beautifully about Sam, along with singing, prayer, tears and laughter.

While all who loved her are overwhelmed with grief for this irreparable loss, we are also grateful for the gift of her extraordinary life for 33 years, and the tremendous support that she received from so many people.  

Donations in her memory to the Dysautonomia Foundation are welcome.

https://familialdysautonomia.org/donate